INTESTINAL TRANSPLANT REGISTRY:
To be used for Patient Update -ONLY-
IMPORTANT: Please read Carefully
-If Possible fill in all the items in the form. -All the dates use the following format: MM/DD/YYYY eg. 03/12/2009 = MARCH 12, 2009
*(asterisc) denotes mandatory field. Information must be entered in order to submit the form
Patient Demographics
Patient Status as of May 31, 2009
Select Alive Deceased Lost Follow-UP
If Deceased
Sepsis/Infection Lymphoma Graft Rejection Technical(thrombosis, non-functioning graft) Other
If Lost Follow-UP Date of last contact (DD/MM/YYYY)
Current Immunosuppression as of May, 31 2009 or prior to graft removal/death
Select Early failure before maintenance immunosuppressive therapy was started No maintenance immunosuppression Immunosuppresive Medication is taken
Modified Karnofky Performance Score
Select 90%-100%: Well or minor symptoms. Resumed Normal Activities 1%-89%: Able to care for self as appropriate for age, but unable to resume normal activities 31%-60% Requires significant assistance. Home bound 1%-30% Hospital bound
Lymphoproliferative Disease
Yes/No
Resolved Ongoing Died
Was the Graft Intact as of May 31, 2009 or at time of death?
Select Intact Removed
How many times has the Patient been Hospitalized in the past 12 months?